Monday, May 21, 2012

Managing my MS


It's been forever since my last entry. Lots of things have been going on. Mostly good. My Ms is under control for the most part. I try and keep a positive mindset. It is what it is and I have to make the best of my situation. Seems like the more I stress,the worse off I feel. Who wants to be miserable all the time? Not me. The past few days I have had an episode.The brain fog,massive headaches,numbness and feeling dizzy. Gives me a good excuse to sit on my rump and watch trash TV!! LOL.

I have a few friends who understand what I am going through and that helps bunches. Don't like talking about my situation much unless someone asks. Even then there is this nice weird bit of silence that follows. Nobody likes that. Learning to say "I'm just fine thank you very much." Learning to manage is key when it comes to this disease,or any other. Most days I'm feeling just fine and I know I'm a lucky girl.
Count your blessings as well as your health!! Never know when the things you treasure most of all could be changed in an instant.

Peace and love till the next time!!! :))

Sunday, March 25, 2012

Birthday blues

Hello! It's been a good while since I have blogged. Just needed a break I guess. Yesterday I turned 36. First year to be diagnosed with MS. I have looked back at this past year and it has been a huge blur for sure. For my last bday I had a blast with a great friend of mine,whom I met on the internet on a Weight Watchers support group. She has been one of my few rocks I tend to lean on. We had so much fun making pb cupcakes and just hanging out. I am thankful for people like her in my life.
This year my husband and I hung out with a newly wed couple,Holli and Chris. She is my good friend as well and we get to work together side by side. She had the most beautiful wedding a couple of weeks ago and I had the pleasure of being in it. We went to dinner,then had ice cream,after that we decided on going to the movies. I was actually able to stay awake and enjoyed myself!

Earlier in my day I do gotta say I got a lil depressed and felt so alone. Heard a song on the radio and actually started to get upset and cried alone in my car. I have only allowed myself to cry twice since my diagnosis. I grew up fast and had to learn quickly not to depend upon others in my life. May sound a lil mean to say this on my blog but my own father didn't even call to wish me happy birthday. That says something for sure. I'm a lucky girl though. My husband is my rock!! He let me have the day off today from cooking and he helped with my grocer shopping today. Such a sweetie <3

I do have to add that over all I have been feeling a bit better. Aside from some pain every now and again I do ok. Today I had some weirdness going on with my right eye so in the morning I will call my Nuro just to be on the safe side. Have been told that it's for sure another symptom of ms. Ok let me see...legs and arms falling asleep,headaches,constipation,sudden urge to urinate,body aches,dizzyness,the list goes on and on lol!! I'm lucky though really I am! So far no loss of sight and nor am I in a wheel chair. :))

From now on each birthday will be special and I will continue to push on. No giving up here allowed. Your only as young as you feel and right now I feel 60 but that's ok!!! LOL just kidding.

Well thanks for taking the time to read my blog and I promise to post more often!! :))


Friday, February 17, 2012

Work it

So I haven't written anything in a few days. Just have been a little busy. Over all life is going pretty well. Just had my Copaxone injection in the belly area. Tonight it wasn't too bad. guess I'm just getting use to it. This week I have been getting back into exercise. Dragged out the weighted hula hoop. Love that sucker!! Been eating Gluten free for three weeks now and it seems to be going well. Tonight I did have some baked chips with low fat cheese. I need to get rid of this dairy lol. Does not agree with me at all!! It was easier to give up Starbucks than cheese!! Well I will continue to try my best. Never give up on me.

I saw this photo and it just spoke to me. What does it mean to you? To me it means I can sit on my butt and complain or I can get up and take what it is that I want in life. I just love to listen to people complain about crazy stuff they can control. With MS you have to lean how to manage,not really controlling it completely. When it comes to your health in other aspects,for example food,you do have control. We can choose to be defeated or take the cake by the horns and say no lol!! Omg lets do not talk about cake!! I have a serous sugar addiction that I have to manage. I have learned that once a week I can have a lil something to keep it at bay. Maybe like some Nutella covered strawberries for example. Especially when it's that time if you know what I mean. Clean eatting is super important to me so during the week that is my focus.

Tomorrow is Saturday and I work. Gonna be about that time to start getting into the yard again. The weeds are getting bad. There is nothing like the smell of fresh cut grass!! I love it! Well I hope everyone has a wonderful weekend and remember that if you really want something bad enough all you gotta do is put in a lil work. Make take a while but you are worth the wait. :)

Amy Sleep


Tuesday, February 14, 2012

Sweets and what they do to MS

 As I sit here on my couch snuggled with my beagle Jack,I'm thinking of all the stuff I should be doing lol. Just got done watching The Today Show and now about to watch The DR.'s. Of course it's a Valentines Day special. We won't be going out tonight with the crowd. Totally past that! I would rather stay home and have my husband cook and serve me a nice healthy dinner!! We are gonna have some collards,lean pork chops,oven roasted veggies and my husband wants Key Lime pie. I won't be eating it cus it has gluten and unwanted sugar. I can tell my moods get way off when I over do it on the sugar or even sugar free stuff. I get these weird sensations in the back of my head. Like an itch I just can't get to. My memory acts up as well. With MS you really gotta stay off of the Splenda and sugar substitutes. It breaks down the lining that covers our nerves. Once that is broken down it sends mixed messages through out our body. Thus causing twitches,loss of eye site,numbing  and or burning sensations in our limbs, sensitivity to cold or heat ect..ect.. sooo it's not worth it lol. OMG I miss my diet cherry Dr. Pepper!!! Lifestyle changes are a must. I wanna live a long healthy life. Do I have my moments? WHY YES! Lol,but I have been keeping it to a minimal and am feeling much better.

Think I am finally coming to terms with this Chronic Nerve business. No we are not completely friends but I think we can learn to be neighbors. No I won't bother to knock on your door and ask to watch a movie with ya,nor will I wanna come over and borrow a cup of sugar! You can keep it, If I see that you try and sneak in through a window I will shove you down the fire escape. :) Fight you with all that I have. Will not be defeated.

Enjoy this day with your love.If your love is far then send him or her well wishes. If you don't have one then treat yourself!!

Thanks for reading my blog <3

Monday, February 13, 2012

Rainy day

It's one of those stay on your couch and in your jammies kind of day! Nasty as all get out once you step outside of my door. Got up this morning and lounged for a bit,then did some cleaning. that's when the fatigue and leg wanted to start acting up. I took a lunch break and then decided coffee and some good music was a must!! One of my favorite songs right now is by Flo Rida..Good Feeling. Not only is he a good looking guy but this song and video hits me when I watch it. In some parts of his video he is jogging or doing some sort of exercise. Working out makes such a difference mentally and physically. Today mine was cleaning and having a concert on my couch lol. Go Flo!!!!

Well I think after every good rain shower comes a nice rainbow once that sun decides to peek out. I'm trying so hard to get use to my new life. I have lost a lil bit of weight and have been feeling more energetic on most days. This is good!!

I'm also learning that foods can be a powerful tool in my journey. Like today for example, I had a gluten free burrito for lunch. It sent me crashing afterwards!!! Lesson learned. Stick to real food if I wanna stay awake and function like a normal person.

I'm still waiting on some blood work to come back from over a month ago. Went to Houston to visit a specialist at Baylor Medical Center. So far no word. Think it's time for a call.

Well I hope your Monday turned out just fine and if not just realize that there is a rainbow at some point in your own personal journey. All you gotta do is look for it. May not be any but hey you never know!

Thank you for taking the time to read my blog!!

Saturday, February 11, 2012

Wonder Woman?

I may vent here just a bit so bare with me.....

Today was a great day! I get to go to work later than normal.Enjoyed my morning coffee and got to watch the Today Show before work. Didn't realize it came on on Sat. mornings. That was nice. 
Had a nice productive day at work and fit in a couple of new clients. Worked a little later than expected but that's ok! I love my job. Well after that we went to the in-laws and I got to visit my lil nephew. Ohhh he is a doll!! So sweet and loves to cuddle. I didn't visit too long but we had fun.
When I got home I decided to drag out the vaccum. In the middle of my cleaning streak it decides to go out. So I sweep my rugs and floors as best as I can. My legs are bothering me by this point but nothing major. A couple of hours go by and BAM!! Both legs wanna fall asleep all the way down to my feet. Fatigue sit in...

Note to self. I need to listen to my body. I just can't keep going like freaking Wonder Woman! All I did was sweep the dang floor LOL!!! Humm. So now I'm in my bed with my feet up. Tomorrow this mess better be gone. I am a tough cookie and can handle most days but I will not go by a cane or end up in a wheelchair just to clean my house. SCREW IT!! LMHOOoooo.

Plans for tomorrow. Sit on my bum and do some stretching. My eating has still been good and that scale is going down! Personal victory for today. I fit into a pair of my smaller jeans!! Yes! I win lol ;)

Hope everyone has a great weekend and please take care of you cus nobody else is gonna do it!! 

Friday, February 10, 2012

Love Day

Valentines Day is approaching us. We don't normally make a big deal over it. The holidays were  just here and my birthday is comming up in March. I just wanna stay home and put my feet up while my husband cooks for me :) Sure there may be a big mess to clean up,but that's ok. Would much rather do that then go out with all of the crazy folk. Having MS just makes me wanna stay home and relax away from crowds and noise. We use to go to the movies quite often. Once to twice a week. The last couple of times was either on a Monday or Tuesday. Both times my husband had to get up and ask people to ssssshut up! LOL why pay to sit and talk? I just don't get it. Maybe my age is catching up. Now that being said, any woman would love to be swept off of their feet for Valentines Day or just any day for that matter. We are alot more simpler than men realize! Foot rubs,lil candy or a simple go CLEAN my kitchen would be awesome!! :0)

Ok trying not to go into that subject too much. It's love day weekend after all. I have to say one of the most memorable V Day gifts I ever received was when my husband and I were first dating. We worked at Mcdonalds. That's how we met years ago. I was at home and he came over with a heart shaped pancake and a poem. He use to write for me all the time. We still have our box of love letters and pictures we would draw each other. Sweet hu? Yep sure was!

So do something nice for your sweetie this Valentines. Please feel free to share your plans for love day!! Have a great weekend! Ps if my husband is reading this...please no candy!! Watching my girlish figure!! However diamonds are free in Weight Watcher points lol. Just kidding!! ;)