There was an error in this gadget

Tuesday, January 31, 2012

Results...

 So yesterday I got some info in regarding my latest test. Had a spinal MRI last week. I get thees results over the phone from a receptionist. Just the general "what's wrong with you" deal. Well partly good news here! No legions on my spine!! However I have what is called "degenerative disc disorder." It is in my neck causing havoc lol. She gave me no actual info on this,just stated that ms is not present in my spinal area and I gotta wait for further info from my Dr. in the next visit..umm 28 days from now.

I hope this is something that can be some what controlled at some point! Looks like from my reading up and talking with my mother-in law it may be! Yes we are friends lol. Anyway if surgery is needed then I will explore that option but I hope not.

Over all I have MS and a neck issue. It does not have me! I told a friend of mine yesterday..Holli as long as I can have chocolate every so often I am a happy woman!! I mean it too!!Never come between a woman and her chocolate or coffee. Coffee is a sure must every day to fight this fatigue. I don't mind taking it either ;)

Will fight this all the way. I learned something today that about brought me to tears!! One of my fb friends is doing a walk for MS and she asked my permission to use one of my photos on her shirt! The sweetest thing ever. This gets me to thinking I also should get involved in some sort of walk or host one maybe? Will ponder this!!



Sunday, January 29, 2012

Spring like

Our weather lately has been pretty nice!! This morning it was chilly burr lol. Texas is bipolar when it comes to the weather. I am cold 24/7 it seems,always have been. No matter where I go I'm freezing!!
  The other day I heard some birds outside in the back yard. Guess it's almost time to get the bird feed ready. My cats love to watch them! Those suckers are mean to my babies lol.
  Yard work was always a passion. I'm gonna find a way to get into the yard this year no matter what. Use to spend hours and hours in the yard. My arms looked fabulous!!!!!!!! Lmho. Well they did!
 Another great thing about the spring is just the clothing! Love those long loose dresses and flip flops. being a girl is so much fun at times!
 So here's to seeing more sun and to longer day's!!

Friday, January 27, 2012

Drink up! Wind down!

 If you know me well you know I don't drink much. Maybe one or two drinks a year at tops!
The last drink I had was on my birthday last March with a friend of mine at the Casino.
Oh we had a blast! She even won some dough! Was very happy for her cus it was our first time meeting! She is still a great friend of mine today! This lil thing flew all the way from Wisconsin to come visit a stranger she had met online lol. That was so crazy I know but it was so worth it to invite her into my life! Love ya Cindy!!!

My point is that this week I am wanting to wind down and may decided to have a lil something. The thing is people with MS are light weights! Were a lil loopy any who sooo it doesn't take much lmhooo. I have always wondered why I just can't have more than one drink before I start acting up! Now if jello shots are involved well that's a different story! Two years ago I made some for a Halloween party and dang they were strong!! Umm but they didn't last too long. I came home and went to my room,after at least 7,and my husband walks in on my talking and laughing at myself!! Too funny lol. Yep liquor and I do not mix!!

I may have to find a skinny ritta at some point this weekend. Chilli's has a skinny ritta for 110 calories. Gonna think about that!!! :) This sure looks purdy good!!! Have a great weekend folks!!






Thursday, January 26, 2012

MRI Country Blues

 This morning was my spinal MRI and it wasn't great but not too bad. The nurse was nice and let me listen to country music. I chose that so I wouldn't get the urge to rock it out and wanna move much lol. As she tucks me in and moves me into position I start to freak out a bit so she gives me a nice cool towel to cover my face. Did take something my Dr. prescribed for me to make me chill out a bit. It had a late start! My arm starts itching and I'm like oh crap I'm not suppose to move!! It's so loud in there and the bed is shaking. What do I do?? Well I tried to zen myself out and get into the Kerry Underwood song that was playing loudly on my headphones. Just Breath AMY!!! So 3 hours later I'm alive and well lol. So groggy and stumbling everywhere from my meds.
I wasn't drunk I promise officer ;o)

My husband picks me up and I get home and sleep it off. Can't wait for the results to get in. Hopefully next week. Our spine is so important! Nerves are attached to it and so is the brain.

This was my second MRI. The first one was of my brain and during that one I had a nice cold so it was torture. They found over 20 legions. Yea that's scary but hey I'm still functional!! They said they were old. Good sign. Now I do have to say the Lumbar Puncture (spinal tap) was a slice of cake!! They just stuck that needle in my spine,while I got to watch) and I really didn't feel much. It was so cool to watch that too!! Yes I'm weird :0)







Wednesday, January 25, 2012

Licking Windows

The past few days have been such a blurr! I feel like this animal lmaoo. Yep genuine and certified window licker. Will call him bob the window licker lol. Just let it out!! :)

Ok so we have had some issues to over come.
On top of that my spinal MRI is at 7 am tomorrow. Gonna be a long night I can feel it. Glad for the MRI though. It's been a long time comming!

After that I think my husband and I both will sleep the entire rest of the day. They are putting me out for the 3 hour procedure. Yea!! LOL. The last MRI was of my brain and I had a cold so that was torture. Gonna sleep gooooood!!

Ok it's time for rest. My cat pumpkin is out and she is purring in her sleep. Looks so peaceful. Hope I can sleep just as good as her. Catch some zzzzzzzzzzzzz's

Tuesday, January 24, 2012

It's ok to cry

 My day started with a meeting at work. These girls are awesome!! I am so lucky to have them in my life. We went over the general rules of the salon and went over some things that a few of us has learned at a hair class last week. Over all it was a great meeting. The owner is a good friend of mine and she and I have been together forever it seems!! We have been trough a lot together. She asked me to speak today about MS and just touch on a few things. I am like Bridget Jones when it comes to talking in front of an audience anyways so this added more pressure. I thought OK no biggie,I was all for it!!!I'm gonna make this short and then we can keep going.Well I get one maybe two sentences into it and hear comes the ugly cry! I am not a crier so it was ugly lmaooooo. Ugg so embarrassing!! One of the girls took over for me. She was a god send! Thank you so much! You know who you are!!

I have only allowed myself to cry one other time about my health issue. I think it let out some stress even if it was ugly lol. A few of us were in tears together. It's nice to know that I have so much support. Just warms my heart.

So today's lesion is cry when you need to Amy,slap someone around too if it helps!! Just kidding :)

Thank you for reading my blog and feel free to share your ugly cry stories <3

Monday, January 23, 2012

UP!

 Do you hear that lil voice inside you say "get up,don't do this,do that..bahaabahhaa lol?" My mind constantly goes. Even if it looks like I'm all chilled out. I feel like it's a race to the finish line,but there is no ribbon,no people cheering me on or no bubbly champagne waiting on me. Wake up and smell the freakin roses! LMAOooo that's what I tell myself. Don't depend upon others to cheer ya on. Sometimes I do need a kick though. Shhh don't tell my husband I said that! :)

I have been thinking about going to the grocer store every since I got up this morning. I need stuff to make chicken and rice soup for tonight,fruits and veggies. The car needs a good cleaning out. I wish I had a couple of kids to pawn the car washing on! Wouldn't that be nice!! This fatigue is killing me. Coffee is not doing it.

Ok I decided that I need a shower and it's time to dust myself off!! Enough is enough.  No pitty party allowed.Today I'm making some healthy gf muffins too. I have always loved my Mondays off. Those are my cooking days. Time to crack that whip!





Sunday, January 22, 2012

Sane

I have a birthday coming up in March. The big 36!! Oh my lawrd lol. I ask myself htis question....how has being 35 treated you? Do this every year. Well I found out I have MS,my memory is that of an old lady,my bladder is outta control,back and body aches ect ect...!!! Who doesn't have problems?? I can wallo in my sorrow or just be glad for one more day! 36 is not old. Am the same person as when I was 25,22 or 17. Outside has changed some. For the better! I lost over 100 lbs with Weight watchers and plan on keeping it off.

As we age and as my disease progresses I wonder if I can keep my sanity? I'm a lil nutty anyways so I think I will be just fine. Just need to exercise my brain and keep the stress down. Stress can bring on relapses and that's not good. 

Maybe I can find a hobby like knitting? Have tried the jewelry thing and that was fun but I got a lil obsessed lmaoo.Hours and hours of making jewelry. Had fun though. Keeping the mind busy is a good thing. Sometimes I read. Oh am a huge True Blood fan! The Sookie Stack House novels are awsome!



Please feel free to share you ways of destressing!! :) 






Saturday, January 21, 2012

The weight of cake

Today's subject is about weight,as you can tell by my lil curvy red head on the side. I have been on the gluten free lifestyle for two weeks. I like it and it keeps me from over doing it on the sweets. People who know me know that I have lost 115lbs on Weight Watchers. I have gained 15 lbs since this past year. The fatigue has taken over my exercise! I have decided I need to get to the gym on Monday and get in the pool that I pay a monthly fee for lol. Enough is enough! I miss that take my life and health by the horns person I once was!! I think I could be a swimmer. To be honest I have gotten use to my curvyness. COMPLACENT!! Yep that's the word heee. Ok normally I am this all or nothing gym freak. Gone is that Amy. I need to find balance. On top of that it needs to be done not just to get into my skinny jeans but for my health. Even if I loose 5 or 7 lbs it's a step in the right direction!

One thing about MS is that sugar,dairy and sugar substitutes break down the lining that covers the nerve for protection. May also be some other things I should avoid but I can't remember. Day's of the diet cherry DR.PEPPER are over. OMG that was my
crack!!!!! :) I am proud to say that I went to a friends bridal shower today and had a nice salad before I arrived. Avoided "THE CUPCAKES!" Yea me! Cake is just another form of "CRACK!"
ONCE A SUGAR ADDICT ALWAYS A SUGAR ADDICT. You just gotta learn how to control it.
Any sugar crack heads out there?? Yea you know what I'm talking abut! HA!

Ok now that the crack is outta my life it has been replaced with coffee mmm coffee!
A nice warm cup sounds great about now......


Friday, January 20, 2012

Ants in my pants?

Anyone with MS and on Capaxone knows what it feels like to have aunts in your pants!
This itchy sensation,along with the dreaded lumpy knots under the skin is just what
anybody could possibly hope for. Not lol. I hear after a few months your body starts to adjust.
Just as like with any other medication there will be some sort of side affect or side affects.
Dry mouth blah blah blah. Makes me wanna drink a cold coke from Sonic and I hate coke! OOO but they have the best ice around! On our last vacation we took our dog Jack and he and I both shared a cup of Sonic ice lol. Reminds me of another crazy side effect of ms..car sickness or motion sickness. We were in the mountains and I was so sick! At least the view was nice! I could live in the mountains for sure. Hubby was very patient with me and we stopped prob every hour or so just to stretch and let me get to the ladies room. Yep just one more issue with MS. When it comes to it you gotta have a plan for that restroom to be close or you have a second plan. Umm depends lmaoooooo. Umm not at that state at this time :)
Am fully stocked up on Benadryl,cream,spray and cooling jell. I have to say the jell is pretty nice!
So if you happen to personally know me or someone with MS and they are on Capaxone,just know there is a reason why they sneek a scratch! Yep Ants! :)

Amy Sleep ZZZZZZZZZZZ

Thursday, January 19, 2012

Dance...

 Fourth Blog!

This morning as I leave for work one of my favorite songs comes on the radio.Martina Mcbride,I hope you dance(I think that's the name.) Anyway I sang it loudly in my car and didn't give a hoot who was watching lol. Now anyone who knows me knows that I do not dance!! I suck like Chuck! :)
It was an uplifting song and I enjoyed it. Ms keeps me from doing my normal things at times. It slows me down but I will not give in. I just gotta keep on going. A client of mine today said we can cry and take pity on ourselves or just laugh and keep going. Some days my legs hurt,my memory loss kicks in, or something else! Because it's a nerve disorder you just don't know what the day will bring.I think back to the old me,a year ago I was active and in my yard every weekend! Come take a look at it now! Looks like crap lmaoo. Oh well nothing is gonna happen to me if I have crab grass or a few hundred weeds! Who cares lol. This spring I hope to prune the red roses I planted a few years back for my late Grandmother. She was such a strong loving woman. Nobody can replace your grandmother! Some of her last words to me were "Amy I want lots and lots of red roses at my funeral!!"She got that plus some! On top of that she had a Mexican band play at her funeral in the Catholic church because she wanted it to be like a party! What a wonderful woman! She just wanted us to dance

Thank you for reading my blog. Remember to dance even if you can't lol. :)
Amy sleep zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz


Wednesday, January 18, 2012

I have already Blogged today but am probably gonna have a little trouble sleeping,I can feel it! My cat Suki is giving me the eye from a cross the room. She is a black and white short haired cat with lots of attitude! We had another black and white a few years ago she passed away. She also had major attitude! What is it with these black and whites? I don't care what people say but cats seem to express tons of individual personalities. Some greet us when we come home and others do not. Hate to admit it but we have 8! I think like some people they do do like to have some space. You gotta know when to mess with em and when not too,or you may get scratched!

My aunt came to visit one day and she is not a cat fan. She had a bad experience once with a mad cat! Any way she went to use the bathroom and didn't realize that one had slipped in lol. She was doing her business and next thing ya know she looked up and one was about to pounce! I heard a loud scream lmbooo. Poor thing. I felt so bad. They are funny creatures. You just never know what to expect.

One day when my husband was eating fried chicken Sugar,our now diseased kitty,jumped up and snached his chicken leg from his hand and ran under the bed with it. The sound that came out of her mouth was like a demonic black panther! It was a super hard to get that chicken from her,but we laughed our butts off. Oh gosh we miss her. 

Sugar had seizures due to an allergic reaction to the medication she was given when going to be spayed. It was so sad. She lost her sight and her two front paws cramped up to where she could no longer walk. We tried everything to get her back to some kind of normal. Even sent her to Texas A&M for further testing. Eventually she adapted to her surroundings and was even able to get around quite well. We then decided to move and that's when we realized she needed to be put down. It was too stressful for her and her seizures started up again. Ohh so sad! Anyway I know she is in a much better place now!! 

Sorry bout my bummer post!! Hope everyone has a nice night!

Sit Stay!

I'm having an issue today! My right leg wants to give out. Humm may be in need of a diva cane in the near future! Just kidding. However I think I could rock out a bling bling cane or walker if need be,but not anytime soon!!! I am excited to get an MRI of my spine. Need to know whats up before I fall an hurt myself or maim one of my animals lol. I had a couple of coworkers get on to me today. SIT AMY! Gosh it's hard to sit 24/7. By the time my day is up and I get home I can sit all night and no problem. Snuggle up on the couch with my beagle Jack. This is gonna take some getting use to.

I had a client come in today. She is 70. Cute as can be and has a spunky personality,she also has lots of health issues. She was going over her medication and daily vitamin intake. This lil woman was full of information. As she is giving me her advice on things I kept saying yep I do that,yes mam I am taking the same thing too,yep yep lmaoooo. OMG I'm becoming an old lady!!! It's all good. It is what it is and at least I have a few older and wiser folks who can relate.

Lesson for today...
 Sit when I am told and take my vitamins! Health is something we all take for granted until one day it knocks you on your...well you know!
MS has taught me a few things. Slowing down is a good thing. Accept help. Eat your veggies! LOL

So tonight as I sit here with Jack and rub some Benadryl cooling jell on my swollen injection areas, you MSer's can relate, I ponder on thoughts of what could had been and what still can be. Life is not over I think it's  just starting to take a different route. Ps my dog just passed gas but that's ok!!! LOLOL omg no more treats Jack my goodness boy!! ;)

Amy Sleep zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz

Tuesday, January 17, 2012

Rush Rush!

Hello,
  So this day started out with coffee! Omg I am in love with it lol. I had a follow up today with my Neurologist. Since I went to Houston to see a specialist last week,whom I love by the way, I thought ok this will be an in and out visit. Lick-ity-split! Well she decided that since I had an episode in Kroger last week I need to have an MRI on my spine. I thought I wasn't gonna make it to my car due to my legs locking up on me. Scared the poo outta me lol. I made it nice and slow eventually while hugging my buggy hunched over like an 80 year old woman. I had a few looks but all was fine.:)
 Any who a lil over a year ago I injured my lower back working out with a personal trainer. I'm sure this is not helping the matter. SOOO I informed her that I have no problem with the MRI I just wanna be knocked out cold thank you very much! She agreed. After that I went to run some errands and then meet my two brothers at the salon. I'm off today but decided these two are in dyer needs of a fro cut! They entertained me as my payment lol. To my surprise they both swept up after themselves like good boys.
  It was then time for lunch with a coworker for a nice long chat. I had a yummy salad. Came home and started cleaning. This day has flown by. I have noticed I am a clutter bug! OMG bad lol. I did not make a New Years resolution. Typically it involves loosing some form of fat off of my body lol. This year I guess I need to "clean my closets." Get out the old and bring in the new!
HA!! Fed Ex man just arrived with our new scale lololol!!!  My husband promised me he would start Weight Watchers with me.  I have been on it about 6 years and have been successful.

Lets share some resolutions!

Monday, January 16, 2012

First Blog!

So here goes nothing,or something!

Just to let ya know I am not the best speller...ect...ect! LOL
So if you are reading this I am not perfect. Now that that's out of the way I say thank you for taking the time to read my first blog.

Just a little about me then we can get into the nitty gritty. I am 35 about to be 25...cough cough :)
I am married to a wonderful husband who puts up with my spicy attitude. I would like to take this time to thank you Neil James Sleep for your compassion and complete understanding in my time of need. I could not do this without you,period! You are my rock even if I don't say it. Ps rocks can be stubborn but hey they have a rough and a smooth side :)

Well I first realized that something was not quite right with me about 6 or so months ago. I had almost daily migraines,felt dizzy,faint at times and often felt flush. NOW for years I had numbness of my hands and feet and at times had this strange sensation on the lower left side of my head. I just thought "oh it's nothing" and went about my business. When it got so bad I could not function I finally decided to get checked out. It was affecting my moods,work and my life in general. I gained weight and could't jog like I use to. That was crushing. I loved to just go go go. This stopped me in my tracks.

After the CT Scan,MRI,Spinal Tap ect. I finally had some answers. I had MS. No denying it. It is what it is and I can't control it. However I will not let it completely control me. I am strong like bull lol. This has taught me to slow down,take care of me. Not just physically but mentally as well. Kick the stress in my life.

As I have noticed my memory short term suffers at times. I literally have to laugh at some of the things I forget!! CRACKS me up!!! Ps my husband loves to rub this in. TURD lol. What is life if you can't make fun of yourself?? I will not loose that dry since of humor. I loose that and I loose myself. Not gonna happen.

I just wanted to say another thank you for my lovely coworkers. I love you all like sisters even if I don't act like it at times. I'm a quiet person at work but I DO LOVE YA'LL!!! You are the best group of girls! I also have some fb sista's up in he house that I love! You girls know who you are. <3

Thank's for giving me a bit of your time and reading my first blog. I am no longer a blog virgin!! Please feel free to ask me anything at anytime. MS has no cure and getting the word out there just means we are closer to a cure!

            Amy Sleep....zzzzzzzzzzz